A Flight to Aunt Nonnie

Miané Pretorius was born at 39 weeks on 7 June 2017 as a healthy baby weighing 2.8 kg. She was never sick, a normal child and her vaccination appointments and check-ups at the pediatrician never showed anything abnormal in her health. In January 2023 she displays very yellow, remains very tired and gets a very high fever every afternoon at the same time.

She is admitted to the South African Hospital for antibiotics treatment, and to do a liver biopsy, gastroscopy and colonoscopy. All the medical team could note was that there was inflammation and small potatoes in her colon and liver that were displaying like “spiders”. Miané is diagnosed with an immune disease that is not only incurable, but that has had an effect on her liver.

This diagnosis, during which her liver systematically hardens, is known as liver cirrhosis. Miané’s parents are at a crossroads with the fact that the immune disease is affecting the liver, and the option for a liver transplant is being sabotaged by the immune disease.

Unfortunately, the Pretorius family can now only go on with the medication she is currently taking in order to stabilize and ease her quality of life. Miané, her Mother Allison, Father Johan and Brother Handré came to visit GROOTfm 90.5

A BIG THANK YOU to Jenny’s Travel, Ecomed Medical and Caring Daisies who helped this dream of Miané come true. Beloved Miané, enjoy your visit with Aunt Nonnie!